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Boy, nine, begs Boris Johnson to help his severely epileptic brother get medical cannabis on the NHS

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A nine-year-old boy has asked Prime Minister Boris Johnson to have his brother prescribed medical cannabis to treat his epilepsy.

Thomas Braun, of Farndon, Cheshire, delivered a letter today at 10 Downing Street asking the Prime Minister to help his brother Eddie get an NHS prescription for the drug.

Medical cannabis was legalized in November 2018, but only three prescriptions have been issued for it since then, according to campaign group End Our Pain.

The drug can only be prescribed by the NHS in exceptional cases.

The families of those denied a prescription have had to pay for the drug privately, which can cost up to £ 2,000 a month.

Thomas (right) went to 10 Downing Street today with his mother Ilmarie Braun (left) to deliver a letter to Prime Minister Boris Johnson asking him to help his brother Eddie get a prescription for medical cannabis to get

Epidyolex is the only cannabis-based drug approved in the UK for the treatment of epilepsy and can also be prescribed for chemotherapy and multiple sclerosis.

The medicine contains cannabidiol (CBD), which is different from tetrahydrocannabinol (THC) – the chemical that makes people high when smoking weed.

WHY REGULATIONS ARE RARE WHILE IT IS LEGAL

Medical cannabis refers to any medicine made from the cannabis plant and has been legal in the UK since 2018.

Epidyolex is the only cannabis-based drug approved in the UK for the treatment of epilepsy. It contains a chemical found in the plant – cannabidiol (CBD).

However, Epidyolex can only be prescribed to patients with Lennox-Gastaut syndrome and Dravet syndrome, according to the NHS.

Both diseases are extremely rare forms of epilepsy, occurring in about one in 15,000 (Dravet) and one in 50,000 (Lennox-Gastaut) children.

This suggests that the two combined make up only about 6,000 people in the UK, including adults who may be less likely to get it than children.

The medicine will only be considered when other treatments have not been appropriate or ineffective, further narrowing the number of people who may be eligible.

The NHS warns that very few people in England are likely to receive a prescription for medicinal cannabis.

The drug can only be considered if other treatments were unsuitable or ineffective.

Charity Epilepsy Action warned that the 2018 law change was “extremely restrictive” despite the legalization of medical cannabis.

Children and adults with other complex and treatment-resistant epilepsy syndromes could also benefit from the drug, it said.

The Medicines Agency, the National Institute for Health and Care Excellence (NICE), recommends using CBD only under certain conditions to treat seizures associated with Lennox-Gastaut and Dravet syndromes, both rare forms of epilepsy.

The patient should be evaluated every six months, and if the frequency of their seizures has not decreased by at least 30 percent, treatment should be discontinued, according to NICE.

The Braun family is calling on the government to step in and speak to them about the problems with access to medical cannabis in the NHS.

The issue has been a controversial issue since the drug was approved, and families are frustrated that it is basically available but extremely difficult to come by.

In his letter, Eddie’s brother Thomas said that his brother meant “everything” to him and that he had severe, complex epilepsy and could have up to 100 seizures a day and needed a lot of extra care.

His parents shouldn’t have the “added worry of having to find a lot of money to pay for his medication,” which can cost up to £ 780 a month.

Describing the day, Thomas said, “I was nervous, it was intimidating. But it was also very exciting because this is my chance to actually change the life of my brother and my family.

“If the government paid for it, we wouldn’t have to worry about fundraisers and other things, and that will give us more family time.”

Thomas and Eddie’s mother, Ilmarie Braun, said her family and friends had fundraisers to help raise money so they could buy Eddie’s medication, but other families had to stop buying them or selling their homes to help them to be able to afford.

She said, “Being a parent is wonderful and it can also be a challenge. Then in your own world it is difficult to be a parent to a child who has complex needs because you have to struggle for access to everything.

“A school place, adjustments at home to make it accessible, the right wheelchair to try and meet Eddie’s medication needs, that’s just unreasonable.”

“We want Boris Johnson to act now. He can unlock the emergency funding to cover this while taking all the necessary steps to get the studies commissioned, all these things that they have been talking about for three years and that need to happen. ‘

Thomas Braun, left, Ilmarie Braun, right, and her family pay £ 780 a month to allow Eddie Braun to receive treatment at the NHS

Thomas Braun, left, Ilmarie Braun, right, and her family pay £ 780 a month to allow Eddie Braun to receive treatment at the NHS

Ilmarie Braun (left) and Thomas Braun (right) handed the policeman a letter in front of house number 10 today.  They call on Prime Minister Boris Johnson to speak to them about the problems of access to medical cannabis in the NHS

Ilmarie Braun (left) and Thomas Braun (right) handed the policeman a letter in front of house number 10 today. They call on Prime Minister Boris Johnson to speak to them about the problems of access to medical cannabis in the NHS

Eddie Braun has severe, complex epilepsy and can have up to 100 seizures a day

Eddie Braun has severe, complex epilepsy and can have up to 100 seizures a day

Hannah Deacon, whose son Alfie Dingley has an NHS prescription for medical cannabis to treat his epilepsy, wrote a letter to Boris Johnson last week about the drug’s transformative effects on her son.

A campaign by the Deacon family and others marked the turning point for the government to legalize medical cannabis.

Ms. Deacon from Warwickshire, who came to Downing Street to support Eddie’s family, said: “Alfie got his NHS prescription on June 19, 2018 and it was like night and day.

“His life went from very severe seizures to a year with no seizures in May, and the quality of life and our family improved with this drug.”

The Braun family and Ms. Deacon are calling on the government to step in and speak to them about the problems of access to medical cannabis in the NHS.

A spokesman for the Ministry of Health and Welfare said: “We recognize the great challenges facing children living with rare and difficult-to-treat diseases.

“The government changed the law to allow medical professionals to prescribe unapproved cannabis-based products for medical purposes when it is clinically appropriate and in the best interests of patients.

“Licensed cannabis-based drugs are funded by the NHS when there is clear evidence of their safety and clinical effectiveness.”

Others have also urged the government to respond to the difficulties faced by those trying to gain access to the drug.

In September 2019, 10 families – including the Brauns – marched in 10th place to demand that their epileptic children be given medical cannabis through the NHS after none of them received a prescription despite the drug being legalized.

On Monday, medical cannabis activists Billy and Charlotte Caldwell sent a letter to Secretary of Health Matt Hancock and the DHSC asking them to support the NHS ‘first clinical study of medical cannabis and fund the National Institute for Health Research.

The Care Quality Commission, which regulates and inspects health and social services in England, approved the first medical cannabis clinic in England in October 2019.

It enabled the London-based private practice Sapphire Medical Clinic to prescribe cannabis-based drugs.

How is medical cannabis used?

A broad term for any type of cannabis-based medicine used to relieve symptoms.

Some products that claim to be medical cannabis, such as CBD oil or hemp oil, are legally available as dietary supplements in health food stores.

However, there is no guarantee that these will be of good quality or have any health benefits.

And some cannabis-based products require a prescription as medical cannabis. These will likely only benefit a very small number of patients.

Epidyolex for children and adults with epilepsy

Epidyolex is a high purity liquid that contains CBD (cannabidiol).

CBD is a chemical substance found in cannabis with medicinal benefits.

It won’t get you high because it doesn’t contain THC, the psychoactive chemical in cannabis.

Nabilone for chemotherapy patients

Many people who receive chemotherapy have periods when they feel sick or vomit.

Nabilone can be prescribed by a specialist to relieve these symptoms, but only if other treatments have not helped or are not suitable.

Nabilone is a medicine taken as a capsule that is designed to work in a similar way to THC.

The drug has been approved in the UK so has passed rigorous quality and safety tests and has proven medicinal benefits.

Nabiximol (Sativex) for MS

Nabiximols (Sativex) is a cannabis-based medicine that is sprayed into the mouth

It’s approved in the UK for people with MS-related muscle spasm that hasn’t gotten better with other treatments.

However, availability at the NHS is limited. The National Institute for Health and Care Excellence (NICE) does not recommend NHS doctors prescribing Sativex because it is not cost-effective.

There is some evidence that medicinal cannabis can help with certain types of pain, although that evidence is not yet strong enough to recommend it for pain relief.

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CBD

How to use CBD oil for neuropathy

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We include products that we believe will be useful to our readers. If you buy from links on this page, we may earn a small commission. Here is our process.

Applying cannabidiol (CBD) oil to a painful area or taking it orally can help relieve neuropathic pain. However, more research is needed to determine the safety and effectiveness of CBD products.

Is CBD Legal?? Hemp-derived CBD products with less than 0.3% THC are legal at the federal level, but are still illegal under some state laws. On the other hand, cannabis-derived CBD products are illegal nationwide, but legal under some state laws. Check local laws, especially when traveling. Also, keep in mind that the Food and Drug Administration (FDA) has not approved any over-the-counter CBD products that may be inaccurately labeled.

Neuropathy causes chronic pain due to damaged nerves. It can be excruciating, and sometimes medication prescribed by the doctor may not provide adequate pain relief. Some people may be looking for alternative remedies, including CBD oil.

CBD oil comes from the cannabis plant. CBD products usually don’t contain tetrahydrocannabinol (THC), which is the ingredient that causes the high that people associate with cannabis. When a product contains THC, the levels are generally very low.

Researchers are studying the effectiveness of CBD oil on many conditions, including chronic pain. Research continues into how safe CBD products are.

It can be difficult for individuals to choose a safe CBD oil product due to the lack of uniform government regulation. Some studies show that certain products are not properly labeled and may contain unexpected ingredients or amounts.

The Food and Drug Administration (FDA) has not approved the safety, effectiveness, or quality of over-the-counter CBD products.

However, to protect a person’s health, they can take action against CBD companies that make unsubstantiated health claims.

Learn more about CBD oil here.

Neuropathy is a chronic pain disorder. A person with neuropathy has damaged nerves.

Damaged nerves can occur after a physically traumatic incident or under a variety of conditions, such as:

Sometimes doctors cannot determine why a person has neuropathy, but they can suggest different treatment options.

When a person develops neuropathy due to treatable conditions such as diabetes, chronic alcohol abuse disorder, or nutritional deficiencies, the doctor tries to control the condition first.

People with chronic neuropathic pain can benefit from consulting a pain specialist when simple pain relievers don’t work.

Doctors can prescribe medications such as:

Learn more about diabetic neuropathy here.

Sometimes treatments in current guidelines do not provide adequate pain relief, and a person may prefer to study CBD oil for neuropathy.

In a small 2020 study, researchers randomized 29 people with neuropathy to receive CBD oil or a placebo.

The participants in the CBD oil group tolerated the product well and had a statistically significant reduction in pain compared to the placebo group.

While these results seem promising, researchers will need to conduct further studies on a larger population to confirm these results.

People with neuropathy claim that several cannabis products, including inhaled cannabis herb, sprays, and tablets, are effective.

However, there is still a lack of good evidence that a CBD product works for chronic neuropathic pain.

Learn more about CBD and the treatment of chronic pain here.

Risks with using CBD oil include the possibility of incorrect labeling, exposure to higher doses of THC, or other contaminants.

The FDA is investigating the proposed health claims of CBD products. They suggest that CBD products can potentially harm users, but it is unclear how these products and their different methods of administration can be harmful.

Some of the side effects reported by the FDA are:

  • Liver damage
  • Drug interactions
  • male reproductive toxicity
  • Changes in alertness
  • Digestive problems
  • Mood swings

Find out more about the best CBD products for pain relief here.

A person can apply CBD oil directly to the skin in the area where they feel pain.
Some CBD oil products are intended for oral administration, for example in the form of pills, tinctures, and gums.

Follow the directions on the label, but keep in mind that there are no set guidelines for using CBD oil for neuropathy.

Find out more about the dosage and use of CBD here.

Choosing a CBD product is a challenge. Buying from licensed retailers is the safest way to choose a CBD product. These products are more likely to be regulated by the government.

There are currently no guidelines in place to help people choose CBD products for neuropathy. When a person is looking for CBD products, they should check the ingredients for the amount of THC that can cause side effects.

Before choosing a CBD product, a person should consult their doctor. Doctors can help monitor patients for side effects and help with therapy choices.

Find out more about how to buy CBD products here.

Please note that the author of this article has not tried these products. All information presented is purely research-based.

CBDfx soft gel capsules

CBDfx soft gel capsules are full spectrum and are taken orally.

Each dose contains 25 mg of hemp-derived CBD, and the company recommends that a person take one or two capsules a day. They also recommend always following the directions on the label.

The company also states that its capsules contain almost undetectable levels of THC within the 0.3% legal limit.

CBDfx soft gel capsules can be purchased online.

CBD fuel full spectrum CBD oil tincture

The company suggests that using CBD oil tincture made from full-spectrum CBD hemp may show benefits after 7 to 14 days if taken regularly.

Full spectrum means that several cannabinoids that occur naturally in the cannabis plant are present along with up to 0.3% THC.

Each dose delivers 33 milligrams (mg) of CBD. Individuals can take this product orally – hold it under the tongue for 10-20 seconds before swallowing.

The company claims the product is non-addictive and contains less than 0.3% THC. They also claim that their products have been tested by a third party.

CBDistillery’s full spectrum CBD oil tincture can be purchased online.

Lord Jones High CBD Formula Body Oil

This body oil comes with a rollerball applicator, which makes it easy for a person to apply the oil to the affected area or pressure points on the body. According to the company website, the product can penetrate deep into the skin.

It contains a broad spectrum CBD derived from hemp. This means that the oil contains many natural cannabinoids from the plant, but generally does not contain THC.

While the product website claims the body oil was tested in a laboratory to ensure purity, it also lists important warnings.

The FDA has not rated Lord Jones High CBD Formula Body Oil for efficacy or safety. In addition, the label indicates that the product is not certified as free from harmful substances.

The Lord Jones High CBD Formula Body Oil is available online.

Some doctors recommend transcutaneous electrical nerve stimulation (TENS) as a non-invasive treatment for neuropathic pain relief. TENS uses electrical currents to activate nerves for pain relief.

Some people prefer herbal remedies. Some remedies that researchers have studied for neuropathy include:

  • Acorus Calamus
  • Alstonia Scholaris
  • Artemisia dracunculus
  • Butea monosperma
  • Citrullus colocynthis
  • long turmeric
  • Crocus sativus
  • Elaeagnus angustifolia
  • Ginkgo biloba
  • Mitragyna speciosa
  • Momordica charantia
  • Nigella sativa
  • Ocimum
  • Phyllanthus amarus
  • Pterodon pubescens Benth
  • Rosmarinus officinalis
  • Rubia cordifolia
  • Salvia officinalis

Learn more about essential oils for neuropathic pain here.

Before using CBD oil products, a person should speak to a doctor as some products can interfere with or interact with other drugs.

Certain CDB products can also be unsafe and cause undesirable side effects.

Doctors can help individuals choose safer products, but cannot guarantee the effectiveness of CBD products for neuropathy. By discussing the use of CBD with a doctor, a person can be monitored for possible side effects.

If a person with neuropathy is looking for alternative treatments, a doctor can help them find a more suitable option. By discussing the therapeutic goals and perceived benefits of using CBD oil, clinicians can help set appropriate pain relief goals and set realistic expectations.

While many people with neuropathy explore the use of CBD products, there is a lack of evidence of their effectiveness.

Certain CBD products, including CBD oils, are not regulated. Products obtained from unlicensed sources may contain pollutants or different amounts of CBD and THC than the labels suggest.

People with neuropathy who feel they are not getting adequate pain relief from conventional therapies should speak to their doctor.

A person must tell their doctor if they are taking CBD products to monitor them for possible signs of toxicity, side effects, and effectiveness.

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CBD

Hemp-Growing CBD Oil Business Model Is Challenging

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Lyda helped set up the hemp grower Healthy Harvesting LLC with its line of CBD products under the HempOfy label. Most of their hemp is handled by hand under his direction. In 2020, they added 6 acres, enough to keep nine workers weeding, pruning, fertilizing and harvesting for weeks.

The harvest on its 6 hectares begins at the end of August and lasts almost three months. Workers cut the branches of the plants by hand, leaving a lonely stem in the ground. Then they wipe off the individual leaves and flowers by hand, which are placed on racks in one of six air-conditioned trailers at 60 degrees F with the dehumidifier running.

After three days of drying, the plant material is ready for processing, which is done by Healthy Harvest itself. Nevertheless, plant material from 2020 was still processed in the summer of 2021. There are often bottlenecks in processing. Lyda’s operation can only produce about 4 gallons of oil per day, which is derived from about 300 pounds of biomass.

Like Lyda, Adam Kline understood that Indiana’s Heartland Harvest had to process the hemp itself to tap existing margins for the company to pay off.

“Pricing is like this for two main reasons,” says Adam Kline. “First, a little oil is enough; and second, the rules about what hemp can be used for have been slow to evolve.” The U.S. Food and Drug Administration (FDA) has not yet enacted regulations on the various uses and sales of CBD oil products.

OTHER POSSIBILITIES

For example, the lack of regulation and oversight has prevented the wider adoption of CBD oil in food and beverages. Heartland Harvest is working on formulations of water-soluble CBD that could be added to countless beverages such as coffee, water or beer.

“There is almost no competition in the beverage sector,” says Adam Kline. “Water-soluble CBD is released quickly and the targeted effect occurs faster.” According to a 2019 Gallup poll, one in seven Americans uses CBD as an over-the-counter treatment for pain, anxiety, or sleep problems. There are thousands of positive anecdotes about CBD, but few, if any, definitive scientific studies to back up the claims.

Originally, the Klines plan was to grow hemp, process the oil, and supply so-called “white label” oil in bulk to other companies and retailers who would then sell under their own label. While they can still do this, they are also preparing to make CBD oil products – for food, beverage, and pet products – under their own label.

“The oils have gotten a bit industrial,” says Adam Kline. “For us this is not necessarily a volume game. We would like to exclude some middlemen in order to get a more attractive price.”

In any case, there are currently more CBD oil than buyers, Adam Kline and Lyda agree. “It’s definitely a buyer’s market,” says Adam Kline.

North Carolina-based Lyda sees her business in continuing to make oil tinctures along with smokable hemp flowers from hemp plants grown indoors. “CBD oil sells (prices were between $ 700 and $ 1,200 a liter at the time this was written) when you have a good product,” he says. “Just not as fast as the industry would like it to be.”

Unsurprisingly, in a young, semi-unregulated market, growers like Lyda and Kline want value-added products.

“It’s as if a tomato grower produces the tomato, processes it into ketchup himself, and then markets the ketchup in a store to get shelf space,” says Lyda. “This is how you have to do it with hemp now.”

**

Demand now and in the future

In 2018, 3,500 licenses for hemp cultivation were issued nationwide on around 80,000 hectares. Although the harvest was not fully legalized until the following year, pilot programs were in place in numerous states. The next year, with legalization, there were 19,000 licensed growers planting hemp on 320,000 acres across the country.

“The market was hot,” said Eric Steenstra, a long-time industry veteran and president of Vote Hemp, a national political advocacy group. “The vast majority of farmers grew biomass for $ 3.50 to $ 4 a pound.”

Instead of pursuing full legalization of the USDA with regulations on labeling, marketing and handling of the plants, the Food and Drug Administration (FDA) has raised red flags or simply delayed the provision of guidelines on cannabidiol (CBD) products. Their ramblings prevented wholesalers and grocery chains from stocking these products.

The combination of thousands of new growers in the market with fewer than expected outlets for product created a “perfect storm” to cool the market down, explains Steenstra. Biomass prices dropped to 50 to 75 cents per pound. Adding to the dismay, many growers decided, on the basis of speculation, to grow hemp without signing a buyer.

There are 14,000 licensed producers in 2021, but according to Steenstra there are still processors and producers sitting on oil and biomass from last year and even from 2019.

However, CBD oil isn’t the only product made from hemp. After all, the cultivation of hemp as fiber hemp was once common in the United States, especially for use in ropes during World War II. In addition, the hemp seed itself is used as a grain like most others. There are already breeders in the US who produce cannabis seeds for $ 1.15 per pound with an average yield of 700 to 800 pounds per acre, says Steenstra.

BMW and other companies already use hemp fiber in dashboards and other composites in vehicles.

**

For more informations:

– Healthy Harvest: Healthyharvesting.com

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CBD

Peels™ Debuts The Purest And Safest CBD On The Planet Made From Orange Peels, Guarantees Zero THC

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Peels, a data and science driven CBD company that brings better wellness products to you, was founded by 11-year-old NFL veteran and seasoned CEO Chris Hetherington, who has high expectations for his new venture.

“Since our CBD is made from orange peel, we have a tremendous opportunity to reach audiences and potentially enter channels that our competitors cannot, expanding the existing CBD market and improving the lives of more people. Our priority becomes always consist of putting our consumers first. ” through continuous innovation and development of data-driven and science-based products to meet their wellness needs. “

“We are very proud of our CBD oil and know that peels will revolutionize the way people see and use CBD,” continued Hetherington. “This amazing herbal supplement has so many benefits and we’re excited to finally offer 100% certified THC- and pesticide-free products for those who have not tried CBD in the past. With Peels, we believe that our CBD- Products deserve a place next to your vitamins as part of your daily wellness ritual. “

Peels’ molecularly identical CBD works in the body in the same way and has the same holistic benefits as cannabis and hemp-derived CBD, but without the impurities and variability associated with cannabis and hemp-derived CBD. CBD interacts with the human endocannabinoid system to produce powerful, natural results. Consistent use of Peels CBD Oil can restore balance and inner calm, cope with everyday stress, relieve pain and calm joints during exercise, and help maintain healthy sleep cycles.

The use of CBD in many stressful and physically demanding work areas such as professional sports, the military and first aiders was previously prohibited even for medical purposes. This is due to unregulated levels of THC found in many cannabis and hemp-derived CBD products that can be detected through regular drug tests. With guaranteed zero THC, Peels offers a worry-free CBD experience.

In addition to the holistic benefits of its CBD, peel also delivers unmatched taste and aroma. Peels gets its scent and taste from the addition of natural, organic citrus aroma and organic medium-chain triglyceride (MCT) oil (from coconut), which gives Peels CBD oil its characteristic orange cream-like taste.

How do you make CBD from oranges? Peels’ proprietary process for extracting high quality CBD from orange peel is called Cyclic Terpene Assembly, a proprietary technique for combining organic molecules without fouling them with solvents or destroying their essence. In this process, terpenes from orange peel are combined with olivetol, a naturally occurring organic compound, under heat and pressure in the presence of a catalyst. After minimal further processing, the result is crystalline CBD that is unparalleled in terms of purity and consistency. Everything that goes into the process is found in nature and everything that comes out of it is found in nature.

Each bottle of Peels is manufactured in FDA-approved facilities under the conditions of current good manufacturing practice (cGMP) and the guidelines of the Food Safety Modernization Act (FSMA). All Peels products are subjected to strict quality assurance tests in accredited third-party laboratories. In fact, Peels’ new CBD oil has won multiple awards from the prestigious Clean Label Project, an organization that tests everyday consumer goods for hundreds of harmful environmental and industrial contaminants, toxins, herbicides and pesticides. The new THC-free CBD oil from Peels has received the Clean Label Project’s Purity Award, the Certified THC-free Award and the Certified Pesticide Free Award so that consumers can be sure that they are using the highest quality, purest CBD in the world .

Peels CBD oil is available nationwide through Peels.com. Buy a CBD Oil Bottle (1 FL OZ, 30 Day Supply) for $ 94.95 MSRP or buy a monthly subscription for $ 71.21 per bottle. For more information, visit Peels.com and follow on Instagram, Facebook and Twitter.

ABOUT PEELS

Peels offers the purest and safest CBD in the world made from orange peel and offers the highest quality, lowest risk cannabinoid product on the market. Peel’s CBD is bioidentical to its hemp-derived counterpart, but 100% THC-free and delivers unparalleled purity and taste. Headquarters in The angel, Peels is a data and science driven CBD company that brings you better CBD wellness products. Peels is committed to its innovation philosophy and passion to improve consumers’ lives. #getpeels

Contact: Alex Jessup, Jessup PR, [email protected]

SOURCE Peels

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