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Communication disorders can have lifelong health impacts – where is the commensurate response? – Croakey Health Media

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According to Tricia McCabe, professor of speech pathology at Sydney University, communication disorders have far-reaching health implications and greater efforts are required to help children, families and others.

“Imagine paying for more and better services for children and young people with communication disabilities,” said McCabe when he recently ran Croakey’s rotating Twitter account @WePublicHealth. Below is a summary of their tweets, including links to many helpful resources.

Tricia McCabe writes:

I’m going to cover the interface between communication disorder and public health using the hashtag #CommSDoH, starting with sharing some information about what we mean by a communication disorder and jumping from there.

Communication disorders (impairments, limitations) occur when people have difficulty receiving a message from others. This may be due to a sensory impairment (hearing loss, deafness, visual impairment) as they have difficulty interpreting the message.

The difficulty in interpreting someone else’s message can arise for a number of reasons including illness, injury, development, or the environment. Understanding what you are being told depends on understanding the content, structure, and purpose of the message.

To understand content, you need to know the vocabulary and sounds of the language. We also need to understand the order of words and the structure (grammar) of what is being said.

Finally, we need to understand the tone, pitch, tempo, and volume of speech that give us the emotion and purpose of what is being said (or written). This is a simple explanation of the understanding as we shall see.

Human communication involves not only understanding, but also the ability to construct a message that others can easily interpret. This may require an effective use of voice, language, language (vocabulary, grammar, etc.), facial expressions, gestures, signs or writing.

To be an effective communicator, we also need to understand how others interpret our message. These skills of understanding and expression develop over the course of our lives and are an integral part of our social and economic success (more on this later).

After all, a person’s environment must enable them to communicate and interpret their communication as meaningful and important.

Thought experiment

So let’s do a thought experiment: what happens in your life when you cannot communicate effectively?

Children with speech and language delay (for whatever reason) hear fewer words spoken to them; hear more instructions and have fewer opportunities to start conversations. The words and phrases they hear are simpler, often “dumbfounded”.

If you start out in life with a communication delay or disorder, you are often at a higher risk of lower literacy and are therefore more likely to drop out of school.

The combination of not understanding instructions in the classroom or being teased or bullied for not understanding them or not communicating in the same way as their classmates can cause it to have an impact in class and lead to exclusion from school.

Children and adolescents with communication disabilities are more often involved in juvenile justice than their peers.

Children and adolescents with communication disabilities are also at higher risk for mental health problems than their peers.

In recent years, health economists like Dr. Paula Cronin from UTS showed that mothers of children with speech delay earn less than parents of children with typical development. I should note that this is the case when all other variables are taken into account.

Back to our thought experiment: what happens in your life when you have a communication disability?

In my own work with people with severe language disabilities, they report as adults:

  • Earn less than their friends
  • They are less educated and less literate than their siblings
  • Adults with a history of lifelong language disorder are more likely to have clinical anxiety, and the worse their language is than adults, the worse the anxiety they report.

Injustices

Above I described a communication disability that has many faces. One of these is the difficulty of understanding the intent of a person’s communication and drawing conclusions from their choice of words, tone of voice, and facial expressions. This is a kind of pragmatic obstruction to communication.

And pragmatic communication disabilities do not interact well with the legal system.

For people with communication disabilities, there are a number of additional factors that make their ability to participate in society even more difficult.

  1. Self-advocacy can be a challenge. If you have difficulty communicating, understanding how to present your case can be problematic.
  2. People with communication disabilities find it difficult to interpret forms, bureaucratic language, or the language of the legal system.
  3. If you are a parent with a communication disability, you may find it difficult to stand up for your children. This can be a double blow when dealing with organizations like the NDIS.
  4. Unfortunately, services for people with communication disabilities, such as speech pathology, are unevenly distributed with a well-known “zip code lottery”.
  5. This is where the Matthew effect comes into play. Families in more affluent areas have better access to services and there the effects of communication disabilities can be mitigated compared to families in poorer areas who share fewer resources and benefit less from limited services.
  6. Speech pathologists use service rationing as a strategy to handle large numbers of cases. The effect in richer communities is a migration to private services, the effect in poorer communities is a long delay before aid is provided.
  7. The cumulative effect is delayed access to services in the early years, resulting in lower academic success and a lifelong increased risk of socio-economic precariousness.
  8. Hearing health is affected by overcrowded or unstable housing, access to clean water and sanitation. Poverty causes ear diseases. Ear diseases cause poor understanding, attention, and participation in school.
  9. And like a language disorder, poor ear health leads to decreased literacy, early school leaving, and greater interaction with the justice system. #CommSDoH not understand = disadvantage.

  1. It is estimated that one in three people in the justice system has a communication disability (see: https://aic.gov.au/publications/tandi/tandi435)
  2. Imagine paying for more and better services for children and young people with communication disabilities.

Another useful resource is the @ orygen_aus Guide to Mental Health and Communication Disorders.

And @SpeechPathAus has a number of fact sheets on these topics for download.

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Open up about barriers rural residents face in getting help for mental health

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We’re tight-lipped in the farmland. To suffer in silence seems to be the way we have been taught. But I think we need to acknowledge and address our problems. October 10th was World Mental Health Day and gave me a nudge. It’s okay to admit that we’re not okay. Write it down on a health questionnaire. Tell your doctor. Be honest and give voice to your mental health, not just for yourself but for those who love you, who need you.

Mental health is important for everyone, whether in cities or in the country. Photo by Kallie Coates / Grand Vale Creative LLC

In the city or in the country, we are alike when it comes to mental suffering and stigma. The difference is that those of us in non-urban areas face three additional mental health challenges. According to the Rural Health Information Hub, these challenges include:

  • Accessibility: “Rural residents often travel long distances to use services, are less likely to have psychiatric insurance and are less likely to recognize an illness,” says RHIhub. Personally, I’m insured, but if I keep an appointment I’ll take two to four hours off from work to attend. There have been instances where I’ve taken a full day off to do a 200-mile round-trip for a counseling appointment. Not all rural residents can change this schedule. Telemedicine options have been expanded by the pandemic. I hope telemedicine continues to improve mental health accessibility.
  • Availability: I love rural clinics and support them with routine health care. However, at the moment I have no possibility of psychological support in a rural health clinic. According to RHIhub, “there is a chronic shortage of mental health professionals and mental health providers are more likely to practice in urban centers.” I called an expert I had seen years ago after a new appointment and was told they were six would book up to a year for new dates. At first, I had empathy for the person who had to answer the phone and make appointments. Next, I thought of those in the mental health services industry who are unable to get in touch with everyone who wants to see them. We need more experts. I still want to see this professionally and personally. I will wait for your appointment. I will also see another professional on video sooner.
  • Acceptance: The first time I wrote about mental health in this column, I received feedback from someone who felt they knew me enough in real life to comment and say I had the mental health issues or the reality Not really familiar with the effects of mental illness is a family disease. She was wrong. I usually don’t stick with the haters or negative feedback, but it did for a while. Then came a person who personally thanked them for talking about mental health. Don’t let this stop you from seeking professional mental health help. “The stigma of needing or receiving psychiatric care and the limited selection of trained professionals who work in rural areas create barriers to care,” says RHIhub. We can break down barriers by saying that it is okay to seek psychological help for you or your loved ones.

Be honest and give voice to your mental health, not just for yourself but for those who love you, who need you, says Katie Pinke.  Erin Brown / Grand Vale Creative

Be honest and give voice to your mental health, not just for yourself but for those who love you, who need you, says Katie Pinke. Erin Brown / Grand Vale Creative

We are all affected by mental health problems. Unless you have any mental health problems or severe mental illness, you know someone who is. Add in a global health pandemic and we’re more isolated now than we were two years ago. Don’t be silent about mental health or serious mental illness. When someone confides in you, help them get in touch with professional help. Listen more than talk. Showing up with your presence is a difference maker.

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You are not alone. You are needed. You are loved. Your presence is a crucial part of someone’s community. I made a deliberate decision not to let the waves of fear swallow me up that I sometimes feel. I fight it with a network of support. I also know that a healthy lifestyle, regular exercise, fresh air, quiet time in my beliefs, and a few things for myself that I enjoy have positive effects on my mental health.

Caring for our mental health is just as important as caring for our physical health. Let’s start by breaking down the rural mental health barriers of availability, accessibility, and acceptance by seeking the help we need regardless of the travel time, waiting time for appointments, or the stigma we need to overcome.

To read more of Katie Pinke’s The Pinke Post columns, click here.

Pinke is the editor and managing director of Agweek. You can reach her at kpinke@agweek.com or connect with her on Twitter @katpinke.

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Facebook should modify algorithms to make social media safer for teens

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Talk to a pediatrician and we will tell you: We are going through a mental crisis in teenagers. The pandemic has brought school closings and stay-at-home restrictions that resulted in social isolation among youth. With more than 721,000 COVID-19 deaths across the country, many teens know a deceased person personally and in some cases have even lost a parent.

Unsurprisingly, pediatricians like us are at the forefront of caring for more than twice as many teenagers struggling with depression, anxiety, and eating disorders.

With this in mind, social media giant Facebook – owner of Instagram, a platform used by more than half of teenagers in the United States – plays a key role. Amid these rising and unprecedented rates of mental illness among teenagers, will Facebook be part of the problem or the solution?

Instagram and eating disorders

Whistleblower and former Facebook product manager Frances Haugen recently testified before Congress that internal research by the company showed that Instagram may have worsened the mental health of young people. In these studies, teenage girls reported feeling worse about their bodies on Instagram, increasing eating disorders, and having thoughts of suicide more often.

We’ve seen examples of this at our own eating disorders clinic, where teenagers often tell us Instagram exposes them to posts that perpetuate unrealistic body shapes and share harmful diet tips.

Facebook’s internal research confirms a 2018 study by the Pew Research Center that shows 1 in 4 teenagers say social media negatively affects their lives because they experience bullying and harassment, unrealistic views about their lives Develop colleagues and get distracted from spending too much time online.

Again, these are concerns we often hear from teenagers in our practice. Such issues are likely to be compounded among teenagers who spend more time on social media, which is particularly worrying given that nearly 90% of teenagers who visit Instagram and other platforms do so several times a day.

This time of immense control presents Facebook with a pivotal opportunity to support, rather than hurt, teenage mental health. Legislators have proposed stepping in and regulating the platform, and as pediatricians we are inclined to support these measures if they are aimed at improving the health and wellbeing of teenagers. However, despite regulation, social media is likely to play a permanent role in teenage lives for years to come. Facebook should seize this moment to take action to clearly improve and support teenage mental health.

Larry Strauss:A teacher’s question: Social media harms my students, but do technical executives even care?

Perhaps most importantly, Facebook and other social media companies should reinforce healthy messages. In the same study by the Pew Research Center, 1 in 3 teenagers reported that social media had a positive impact on their lives, most often because it helped them connect with others or find important information.

However, algorithms in Facebook and Instagram – which are kept secret from public scrutiny – are based on how many people like, share and comment. This approach encourages bombastic, misleading, and unhealthy posts.

We need health-oriented algorithms

Instead, social media companies could specifically curate and actively promote messages about health and wellbeing. Numerous pediatric influencers (e.g. @teenhealthdoc, specialist in youth health in New York) already offer evidence-based advice and health information for adolescents and their families on Instagram and other platforms. Facebook could set up an advisory board of clinicians to assess the quality of influencers’ posts, offer health care providers a review (with the invaluable “blue check mark” that shows a user is authentic and remarkable), and make their posts accessible to a youthful audience do.

Social media companies should also encourage young people to post accurate, health-promoting content themselves.

Tom Kistenmacher:Facebook Revelations: Social Media Strengthened Our Voices, But Impaired Our Hearing

This approach would require Facebook to change its algorithms, which the company is likely to resist unless regulation enforced. Social media companies have come under constant fire for being too late to respond to misleading or harmful posts, which contributes to bad press and negative regulatory attention.

We claim that Facebook should be proactive in its approach and promote high quality content that is interesting to teens. Done right – with an infusion of creativity, thoughtful design, and humor – positive, health-promoting posts can receive a tremendous number of likes, shares, and comments, but may need to be actively promoted amid the negative messages currently prevailing. Realizing that it has a duty to block misinformation about COVID-19, Facebook must take similar steps to protect teenagers’ mental health.

Facebook can also help facilitate moderation in the use of its platforms among teenagers. The current business models of social media companies are driven by the persistent, compulsive use of their products and the advertising revenue they generate. In his credit, Facebook has imposed advertising restrictions on teenagers.

The company should build on this by helping teenagers put their smartphones down. To reduce screen time, Apple introduced Screen Time, an iPhone and iPad integration that allows parents to limit the time teens spend using social media apps. However, workarounds are easy to find for teenagers. Facebook should introduce its own functionality that would allow parents to limit teenagers’ use of its platforms.

We will address the after-effects of COVIC-19 on teenage mental health in the years to come. The reality is that while many of us pediatricians would like to remove social media from the lives of our teenage patients altogether, Instagram and other popular platforms are going nowhere. Social media companies wield tremendous power over young people. You should use it to empower – not hinder – the hard work we frontline pediatricians do to fight mental illness.

Dr. Scott Hadland is the Chief Medical Officer of Adolescent Medicine at MassGeneral Hospital for Children and Harvard Medical School (@DrScottHadland on Twitter and Instagram). Dr. Kathryn Brigham is the medical director of the Teenage Eating Disorders Program at MassGeneral Hospital for Children and Harvard Medical School.

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Study finds a downward trend in buprenorphine misuse among U.S. adults with opioid use disorder

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Data from a nationwide representative survey shows that in 2019, nearly three-quarters of US adults who used buprenorphine had not abused the drug in the past 12 months. In addition, buprenorphine abuse among people with opioid use disorder declined between 2015 and 2019, although the number of people receiving buprenorphine treatment increased. The study, published today on the JAMA Network Open, was conducted by the National Institute on Drug Abuse (NIDA), part of the National Institutes of Health, and the Centers for Disease Control and Prevention.

Buprenorphine is an FDA-approved drug used to treat opioid use disorders and to relieve severe pain. Buprenorphine, used to treat opioid use disorders, works by partially activating opioid receptors in the brain, which can help reduce opioid cravings, withdrawal, and general use of other opioids.

In 2020, more than 93,000 people lost their lives to drug overdoses, with 75% of those deaths being caused by an opioid. In 2019, however, fewer than 18% of people with last year’s opioid use disorder were receiving medication to treat their addiction, in part because of stigma and barriers to accessing those medications. To prescribe buprenorphine for the treatment of opioid use disorders, doctors must do so as part of a certified opioid treatment program or submit a letter of intent to the federal government, and the number of patients they can treat at the same time is limited. Only a small fraction of doctors are authorized to treat an opioid use disorder with buprenorphine, and even fewer prescribe the drug.

Quality medical practice requires the provision of safe and effective treatments for health conditions, including substance use disorders. This includes providing life-saving drugs to people with an opioid use disorder. This study provides further evidence of the need for expanded access to proven treatment approaches such as buprenorphine therapy, despite the remaining stigma and prejudice that persists in people with addiction and the drugs used to treat them. “

Nora D. Volkow, MD, NIDA director

In April 2021, the U.S. Department of Health released updated guidelines for buprenorphine practice to expand access to treatment for opioid use disorders. However, barriers to the use of this treatment persist, including doctor’s discomfort in treating patients with opioid use disorder, the lack of adequate insurance coverage, and concerns about the risks of distraction, abuse, and overdose. Abuse is defined as patients taking medication in a manner not recommended by one doctor and may include consuming someone else’s prescription medication or taking their own prescriptions in larger quantities, more frequent doses, or for a longer duration than directed.

To better understand buprenorphine use and abuse, researchers analyzed data on prescription opioid use and abuse, including buprenorphine, from the National Surveys on Drug Use and Health (NSDUH) 2015-2019. The NSDUH is conducted annually by the Department of Substance Abuse and Mental Health. It provides representative data on prescription opioid use, abuse, opioid use disorder, and motivation for recent abuse in the civil, non-institutionalized US population nationwide.

The researchers found that nearly three-quarters of US adults who reported using buprenorphine in 2019 had not abused buprenorphine in the past 12 months. In total, an estimated 1.7 million people reported taking buprenorphine as prescribed in the past year, compared to 700,000 people who reported using the drug. In addition, the proportion of patients with opioid use disorder who have abused buprenorphine has tended to decline over the study period, although the number of patients who received buprenorphine treatment has increased recently.

Importantly, in adults with an opioid use disorder, the most common reasons for recent buprenorphine abuse were “because I am addicted to opioids” (27.3%), suggesting that people are using buprenorphine over the counter for self-treatment of cravings and withdrawal may have symptoms related to an opioid use disorder and “to relieve physical pain” (20.5%). In addition, adults who took buprenorphine were less likely to have buprenorphine abuse among those who received drug treatment than those who did not. Taken together, these results illustrate the urgent need to expand access to buprenorphine treatment, as receiving treatment can help reduce buprenorphine abuse. In addition, strategies need to be developed to further monitor and reduce buprenorphine abuse.

The study also found that people who did not receive drug treatment and those who lived in rural areas were more likely to abuse drugs. However, other factors, such as belonging to a racial / ethnic minority or living in poverty, did not influence buprenorphine abuse. The study authors suggested that addressing the current opioid crisis should improve both the access to and quality of buprenorphine treatment for people with opioid use disorder.

“Three-quarters of adults taking buprenorphine do not abuse the drug,” said Wilson Compton, MD, MPE, NIDA associate director and lead author on the study. “Many people with opioid use disorder need help, and as clinicians we need to treat their condition. Use disorder can access this life-saving drug.”

Source:

National Health Institute

Journal reference:

Han, B., et al. (2021) Trends and Characteristics of Buprenorphine Abuse Among Adults in the United States. JAMA network open. doi.org/10.1001/jamanetworkopen.2021.29409.

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